“Everyone got to be with Max some more and now we (Mom, Dad, Steph, Colby, Jim, and Susie R.) are all crowded in the pumping room to meet with Dr. Rawlings.” “Max was still getting phototherapy, most things are stable and the nurse (Jen) gave him more Phenobarbital, which is an anti-seizure medicine.”

Had to step out of class … just got a call from Dr. Bowen at the NICU, with the results of the MRI … they aren’t good. They show that Max has very little brain tissue (‘a thin layer’) and that the extensive hydrocephalus may not be the only issue … there may also be [...]

“Just called the NICU. Max’s skin was puffy this morning, so the doctor prescribed two medicines (can’t remember the exact names) to help reduce the amount of fluid (one through his urine). When Jodie, Steph and Colby are there tonight around 5pm, the doctor should have the results of the MRI. I will meet them [...]

Oscar got to help take little Max’s temperature, swab his mouth with anti-phenemonea stuff then both Mom and Dad together gave Max a sponge bath. While Matt and Stephanie were visiting, Dad got to hold Max! Will post the rest of the photos tonight.

When we arrived this afternoon, Max was getting photo-therapy because of increased levels of bilirubin in his blood (jaundice). He will continue these treatments into tomorrow, then they will re-evelaute his levels. Still waiting for the results of the MRI. Both Aunt Stephanie and Uncle Colby were able to touch him some more

There wasn’t too much change from this afternoon. We are still waiting on the results of the EEG and the MRI. Max is still on two blood pressure medications, but that is more stable now. He got moved to a larger incubator, but that was just to give him a bit more room. Probably the [...]

Max had his MRI at 4 am, it was slighty tramatic and had to increase his oxygen to 70% but later in the morning were able to return it to 30%. Because of the respirtory issues a follow up xray was need and showed that some fluid still remains in the lungs. Last night his [...]

Mommy gets to be with Max for the first time since the delivery.

Jodie is released from the Celebration Hospital and is heading to see Maximillian at Florida Hospital Orlando.

Jodie had plenty of company in her room that first night and we are both very thankful for your friendship and support. If you didn’t get a picture of you there, trust us … we wish we had! You all mean a lot to us!