“Max’s RN for the morning, Alison, just finished changing out some of his tubes and administering another dose of phenylbarbital. He is looking even puffier today … due to his not urinating and the continuing need to give him fluids to keep his blood sugar up.” “Daddy is with him right now and Jodie should [...]

“Jodie and I are staying at the hospital tonight, in a ‘nesting room’ only a few feet from Max’s room. We will probably be up a good portion of the night with him and we will be here all day tomorrow … feel free to stop by and visit … we would love to see [...]

“Jo and I are getting ready now, to first pick up Colby, then head to the hospital. We should get there right as the 10am to 12 noon quiet time is ending. Steph and Susie will be joining us before the 2pm meeting.” “As the deer pants for streams of water, so my soul pants [...]

“Just called Kim, Max’s RN for tonight, and she said that when they checked at 11:30, his potassium level was still high, so they started him on medication to help lower it (through a new IV in his scalp). When we left, his potassium was at 8.2 and a normal/preferable level is around 3.5 …”

“Shelly just gave him some phenylbarbital, which is for seizures. Max has had it before.” “Jo and I are here with Max, relaxing and listening to some music …”

“Jodie and I are back at the hospital, and as well as Max was doing yesterday, his current nurse, Jennifer, let us know that he is “touchy” today … his blood pressure has been low, so she increased his dopamine from 3 mcg to 4 and now 7. She also gave him some phetanyl (painkiller) [...]

“Jodie, me and almost the entire Cortez family (minus little Joey and plus Max’s Great Grandma Dolly) are here today at the hospital, taking turns seeing the little cutie.” “His nurse from yesterday and today is Carrie, who we really like. She let us know that he is doing about the same … his oxygen [...]

Jodie is at the hospital almost all of today with Max and she just texted me the following update: “He looks a little less puffy the nurse and I think … I love this little guy! Oh he’s still only 4 on dopamine and they put his lipids back on. Nothing other than that.”

“Jodie, Steph and Colby are at the hospital now … baby Max is off of the dobutamine entirely and his catheter is out (so he has a diaper on). I am going to see if I can leave work early to join them soon.”

“Just talked to Max’s Resident Nurse for the day, Jody, and his condition is still the same … I think her exact words were ‘status quo’. Both his dopamine and dobutamine are low (4 and 2, respectively), but they haven’t weaned him off of any more dobutamine because his blood pressure hasn’t been consistent at [...]