What to be praying about …

Baby Max is being seen by and/or scheduled for consults by specialists in neurology, neurosurgery, genetics, and orthopedics … but from the discussion we had with the Neonatologist yesterday afternoon, the two main concerns are the presence of severe hydrocephalus (excessive fluid in the ventricles) and arthrogryposis (multiple joint contractures).

These are really scary terms … especially when they are followed by others like “quality of life” and “supportive care only”. The MRI results and further discussions with the neurologist will provide more insight, but as I was driving back and forth several times to see Max at the hospital today, the weight of those words seem heavier and heavier.

Just now, after getting to hold Max and driving home in the dark of I-4, my heart reminded me of the fact that “God never changes“. Despite what we know, what we plan for and the mistakes we make, He is always the same. Despite what the next few days hold and what the nurses and doctors and specialists do … before I was born … before Jodie and I even ever met, God already knew Max and he who he is going to be.

That’s kinda really comforting.

“Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.” – James 1:17

“But the plans of the LORD stand firm forever, the purposes of his heart through all generations.” – Psalms 33:11

“As for God, his way is perfect; the word of the LORD is flawless. He is a shield for all who take refuge in him.” – Psalms 18:30