5:19 PM

“Jodie and I are back at the hospital, and as well as Max was doing yesterday, his current nurse, Jennifer, let us know that he is “touchy” today … his blood pressure has been low, so she increased his dopamine from 3 mcg to 4 and now 7. She also gave him some phetanyl (painkiller) when she bathed him earlier this morning.”

“He is 7 lbs, 2 ounces as of last night, but our conversation last week with another nurse let us know that a good amount of the weight gain is due to edema (fluid accumulation beneath the skin). His RN from last night, Kim, also said that the yellowish fluid we had seen from his eyes may also be related to the edema, since tear ducts are another way for fluid to leave our systems. During the afternoon yesterday, he received another dose of lasix, a diuretic that is to help with the edema.”

“The Child Life representative, Amber, stopped by to see us a few minutes ago and let us know that she would be at the Family Meeting we have scheduled with the doctor(s), tomorrow at 2pm.”

“I love the LORD, for he heard my voice; he heard my cry for mercy. Because he turned his ear to me, I will call on him as long as I live. The cords of death entangled me, the anguish of the grave came upon me; I was overcome by trouble and sorrow. Then I called on the name of the LORD : ‘O LORD, save me!’” – Psalm 116:1-4

“Because of the LORD’s great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness. I say to myself, ‘The LORD is my portion; therefore I will wait for him.’” – Lamentations 3:22-24